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dataMSA Surveys for Multiple System Atrophy: Patient Data Report

Bill Sydnor




[PDF.lx00] dataMSA Surveys for Multiple System Atrophy: Patient Data Report

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 | #856190 in Books |  2015-12-07 | Original language:English | PDF # 1 |  11.00 x.51 x8.50l,.62 | File type: PDF | 226 pages

||0 of 0 people found the following review helpful.| Good work considering|By Thomas Bartholomew|Author gets credit for the organization, data accumulation, and bring it all together for publication all the while doing battles with this demon disease himself. It kept him busy and constructive. The are numerous simple errors. It's difficult to read the pages and pages of personal narratives|0 of 0 people found the following rev|About the Author|dataMSA was created by Bill Sydnor, an MSA patient. Bill has worked in health education and recognized the need for patient-driven information regarding multiple system atrophy. He resides in south Florida.

When I couldn't find patient-driven information about MSA, and when my doctors didn't have a lot of information about patient experiences, I set out to create a way patients could share their experiences.dataMSA has collected information from nearly 500 persons worldwide who have been affected by MSA (patients, caregivers, loved ones to those lost). The data has been shared withresearchers at UCSF, Vanderbilt, Mayo Clinic, UF and other centers. This text is an inva...

You easily download any file type for your device.dataMSA Surveys for Multiple System Atrophy: Patient Data Report   |  Bill Sydnor. I was recommended this book by a dear friend of mine.

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